Hi, everyone! We needed just another day to 'rest', so our heading back up to Maine tomorrow morning, with a hopeful stop to say "HI" to my niece & nephew, who I miss so much!
We went to breakfast this morning, then a few errands; ran into some friends/acquaintances & held our own. Visited Maxwell as well. He is always in our heart, but we need to move forward for Gracie. Some days it's easier than others. Being tired is not going to help my pumping or energy for Grace, so I'm trying today just to rest!!
We checked in with Grace this morning; and she is still doing great. They've backed down on the feedings a little, she was up to 5cc's every hour, and her little digestive system was making her throw up, so they backed up a little. On good news, she weighs 1 lb. 14 oz, 2 more to 2 lbs... Yea! She is gaining, and isn't that wonderful. (We say that now..lol.. poor girl is starting young).
Gary was able to put her crib in her room last night, and we put some things in her room. On a weekly basis, we will try to get her nursery ready..it'll help to bring her home sooner.
For those who have asked, we may be able to get her transferred to Boston, but it won't be for a few weeks. And then, it's the same old question as before, if she's doing so well, why do we want to mess that up on her?? So, we'll see what happens.. it's a daily prayer for Grace & we just hope she is well.
Thanks for everyone who has sent cards and/or sympathy wishes here or emails. We enjoy reading your comments & thank everyone for their words & support. Back to Maine in the morning, we'll keep you posted!!
With Love,
pattie & gary, gracie & maxwell (forever in our hearts)
Pattie,
ReplyDeleteI'm so sorry for your loss. I found your story from thebump and have been following along every since. I had a similar 17 day bedrest experience following PROM and daily ultrasounds/BPPs and the birth of my daughter at 29 weeks/5 days via c-section. We spent 7 weeks in the NICU after she had belly surgery. It was insane and exhausting, especially with the pumping. I can only imagine going through that experience after also losing a baby and not being close to home. God bless you. You, your family, and Max will be in my thoughts and prayers each day.
- Jenn @ www.thomanhouse.blogspot.com