Preemie Mom & Kids weekend...

This past weekend, Grace & I went to our first 'annual' Moms & Kids weekend,

with 5 other moms & their preemies!!  I've talked about this group before..

the Preemie Pen Pals group started in 2011 for me, of course right after Grace

was born.  It's a Facebook group & the 50 or so women that are in the group have

all experienced Premature babies.  it's a wonderful group of women who are

supportive of each other & our kiddos. 

 

For the most part, none of us have met before.. but we have started these

GTG (get togethers) to get to know one another & have our kiddos

know each other too.  This year was Grace & I's first.

 

There were 4 sets of Twins, with a total of 10 kids altogether!

Our kids played with each other, talked to each other, read stories

together..and just had FUN!

 

 At the beach "lake".. Grace does not like the sand..nor the water :( unlike her mama..

Grace's personality shined through.. she loved the boys & tried holding this little guy's

hand the whole time.. :) (but most boys like their own personal space!)

All 10 kiddos!!

 

 

There are so many abilities within a disability.. my heart was full of love & awesomeness

as I got to finally put the face to the name of these beautiful children born 'too early'..

but Miracles just the same!!

 

 

 

Love you guys!

 

 

 

thanks for reading!

love,

pattie & gary, Grace & maxwell



Checking in...

It's been a busy Summer so far.. Grace is back in school for a month.

She goes Monday through Thursdays, 8:30-11:30 & is doing GREAT!

(There have been NO calls that she is 'rubbing' her belly.., hopefully it stays that way).

 

I think it's been 6 weeks post surgery & the whole May ordeal in the hospital..

we go back to surgeon tomorrow to check in.  Her skin looks good around the gtube

and she is gaining weight steadily.   She is up to about 30 lbs!!

(she was 24 lbs when she went in to the hospital in May)

 

She's still 'tasting' things...she should be starting a new feeding therapy

clinic in Fall River in a few weeks.  She's being a little definat these days, certainly

giving us a run for our $$ :)  but overall she is doing GREAT & is

HEALTHY & that's really what's important!!

 

 

A friend & fellow "Micro" Preemie mom wrote this wonderful story about

her preemie, Scarlett.. if you get a chance to read it.. please pick it up!

She is my hero.. I started to read it & am trying to find time nightly to continue..

 

The 'preemie mom' group that I've been involved in since 2011 is a wonderful group

of women with babies that were all born early.  It's been a wonderful group to really watch our

miracles grow up...and this weekend will be the first time that I will attend

the Northeast Get together with some of these women..

Grace & I will be traveling with a dear local preemie mom friend as we head

to the Poconos to meet these women & their children.. I will be sure to bring my camera!

 

 

A recent picture of our family..

 

  The Sagres ship sailing out of New Bedford harbor..

 

 

 

 

She's getting there!! 

 

 

Thanks for keeping up!

love,

pattie & gary, Grace & maxwell