Today, Gracie is doing okay! They had to go back on her feedings, back down to 2.0cc's every hour (she had been up to 4.0cc's, but was regertating a bit).. so I'm glad they slowed it down a little. We had had some concerns with them this week that maybe they were pushing the feedings too much; so we are kinda glad they slowed it back down. (she's still little). As of late last night, she's back on cpap for help with breathing as well. She made it longer off the cpap this time around, but she's still little & if she's needs a rest being back on cpap, well I'm okay with that, I don't want my little girl to be stressed out!! (leave that up to her parents.. :)
The good news is that she had her head ultrasound yesterday & there was no change in it since day 1.. which is great. No more bleeds, and it's resolving itself..which is just wonderful!! Best news!!
We keep praying & praying.. Gracie is going to be okay!! She has Maxwell as her personal angel!
The hardest part in all this, is when we're at home we don't have her & when we're in Maine it doesn't feel like 'home', even though we're with her. So like any Mom, we just want her to be home with us! The travelling back & forth we can handle..it's everything in between!!
We love you Gracie! See you tomorrow with Vevo & Vevoo's first visit to their granddaughter!!
Love you girlie,
mommy & daddy, & brother max..
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