It's the day 15 & 16 update from Hasbro!! Yes, we are still here..but on the verge of leaving.. & after feeling completely stressed about our extended stay here and unsure about going forward with Grace's baptism.. it only took me talking (thru texting.. thank god for texting) to two very good friends..to say..
"We are having a celebration!!"
We chose Sunday, 4/22 as Grace's baptism..and we are going to move forward with that date & have it. Our family has been thru so much, I think we all need this blessing of a baptism!!
(I better order the cake!)
Here she is holding her binky.. soo cute!!
And today, enjoying her afternoon nap. So she does have a canula on, but she's on very little oxygen. Someimes she needs a little 'whiff' when she's in a deep sleep. Then the other tape is attached to her NJ tube ..that's how she's getting food..her formula is by passing her belly right to her jujunum (intestines). We will go home with her feeding done thru the NJ tube (for this week).. just to get home..so we can give the gtube area more time to heal. Then we will bring Grace back as an outpatient one day next week, so they can figure out what they're going to do.. as far as the gtube area.
The doctors know that we have IL's coming in from out of town this week to see their granddaughter for the 1st time.. as well as her baptism on Sunday.
As much as this has been a very frustrating, stressful time for me.. I'm happy to be taking her home, finally..and going ahead with her baptism!!
My in-laws are wonderful people.. and they are convinced that we've ordered a town car to pick them up from the airport on Thursday morning... Suprise! They should meet their first granddaughter at the airport..of course!! I'm very excited that they are coming down.. we haven't seen them since last year at Easter time..
Another day at hasbro.. but we'll get out.. I know we will!!
Thanks for your thoughts & prayers!!
Love,
pattie & gary, Gracie & max
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