Well, the reason why we came, is the reason why we are staying.
I've brought my nightclothes & a change of clothes, with the intent of staying thru the weekend; this way I know that Gracie is cared for thru the night.
I have lots of pictures of Grace with nothing on her face, because she pulled out her NJ tube today, and I took tons before we had to go down at 11 to put the other one in..which she did GREAT!! :)
But then she got the new NJ tube for feeds & needed a little oxygen this afternoon.
Sometimes she dips with her 02 stats, and we'd rather her have a little 02 if needed.
So more good news from the renial people (kidneys).. when she came in her kidneys appeared to be failing.. but everyday since her #'s have gone down, almost miraculously.. (guess who that is!?) .. after a few more urine tests from yesterday, everything came back "normal".. her kidneys are working just great! And she is not acidosis..which is one of the other things they were thinking this week, because it seems her acid was higher than normal. Again, she passed with flying colors!!!
The bad news is.. the g-tube site today didn't look so good today... apparently, the stomach tissue has grown over the stoma (not good).. but the skin around the hole looks really good (re-populated).. soo we are not sure of the plan, other than to have it covered up for the next couple of days..(which means the weekend).. then they are not sure what's next. Perhaps a minor surgery to repair.. I don't know..this is the mere part of our frustrations..and it seems not to be getting better!!
So now we sit & wait! I reminded our pedi surg team that her baptism is a week from Sunday.. she laughed & said, "Oh, yes, I promised you would be home, right?"
YES... you did!!!!
Auntie Paula & Uncle Peter stopped by for a quick visit.
Auntie Heather & an Elmo balloon are here now visiting!
Daddy is doing billing.. and, me, after getting caught up on Days of our Lives already.. is relaxing!!!!
Please continue to pray for us.. strength for us, parents..
the prayer is definitely working for Miss Gracie.. and we thank you!!
Love,
pattie & gary, Gracie & Max
No comments:
Post a Comment