Vent: so everything I said last night.. I have to half believe.
It's so frustrating to hear one doctor say one thing to you, and then hear thru the night (Daddy calls to check on Grace twice thru the night).. that there is an EEG pending &
an MRI.. from the neurology team & no one told us. Needless, we got to
the hospital today & asked our nurse.. and then the attending doctor tonight.
She said that neurology did in fact want an EEG (brain wave) & an MRI
sometime in the near future. This is because sometimes Gracie's eyes twitch
back and forth & they just want to rule anything out. She hasn't been doing it much..
We think it's really because of the trauma she went thru when she first arrived.
And the neurologist, Dr. Ben that we met on Friday, said he thinks it'll just go away.
Now we will see.. I guess she may have an EEG in the next few days.
Today, was a good day for Gracie.. her nurse bathed her & then we put on her Easter dress.. she looked soo cute!! And no oxygen canular!!! YEA!!
Tonight, she's getting a femr line (like a picc line) for her TPN
hopefully they'll be able to put it in without a hitch. Daddy will check on her later.
The g-tube is still leaking. We really need to work on that
before we can go home.
Daddy & I are hoping Grace is home by the end of the week.
She's been in there too long as it is!!
Thanks everyone,
pattie & gary, Gracie & max
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