A long day! I waited for Gary to go to his two court appointments today, then we went up to Hasbro together.. got up there around 11:30ish..
When we got there, they were just about to start to try & give Grace
a picc line, so they can take out the central line in her neck.
The central line, has more than one port on it for antibiotics, fluids, taking blood, etc.
The picc line would be for her one antibiotic they are giving.
Unfortunately, after an hour & half, they weren't able to thread the picc line.. :(
so the central line has to stay. She was sedated for this procedure & became very cold..
so cold her body temp dropped, and her heart rate & blood pressure followed.
It was very scary!!! Again, I was watching our daughter turn a color that
no one wants a baby to turn! The doctors and nurses kept their cool, and worked on her, as they have been trained. She was good within a few minutes & some fluid.
Just makes me think.. as Gary & I were just talking about..geesh
"what did I do in a previous life, to deserve this??"
Our baby has been in the hospital, more time than she has been home. On
Easter, April 8th, it would've been the day she would've been home more than the 125 days in the hospital..but now with this added time in..we're back to square 1.
We are getting her the care she needs at Hasbro, and they've been great..
just feel bad for our poor Gracie!
Here she is from tonight.. looking more like herself, a little less puffy!!
They were able to start formula feeds late this afternoon..that's a big plus!!
Auntie Paula & Uncle Peter stopped in to see her.
And Auntie Tess was in a couple of times for a visit today!!
We moved rooms again.. this is our 3rd room in 5 days..
We are in Madrinha Dalila's favorite #.. 222... Things are going to go well from here, I'm sure of it!! Madrinha will be always with us!!
To a better day tomorrow anyway,
Love,
pattie & gary, Gracie & max
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