There's so much I want to say..unfortunately I've been going since 6 a.m. this morning & I really NEED to get some sleep!!
So, here's the short version..then tomorrow I'll add all the "aggravations" of today!!
Our pulmonary specialist appointment in Boston went really well.
We left at 7:00, got a little slow down traffic, but got in for 8:30. Was able to find where we were going pretty quickly. That appointment was very successful. They did an 02 weaning test on Grace, and decided to wean her from .5 to .25 (down 1/4).. YEA!! We will be back to see them in a month.
Her weight is 9 lbs!! And her length is 19.5" long.
Then the drama started.. Pulmonary wanted us to see a GI Specialist regarding the
G-tube area looking really red. (We had just seen our own GI Spec. on Wed, and were going to start a round of antibiotics today).. Well, Children's GI Specialist was extremely worried of the redness around the G-tube & wanted Grace admitted.
We were sent to the ER, and the doctor there..after talking to GI & pulmonary..decided they would admit her. :( :( :( :(
It was a month yesterday that we've been home.. 30 days!!
Now today, my baby girl is at Children's Hospital getting some antibiotics by IV,
and resting!! They say it's already clearing up a little.
So, they think it's a combination of stomach acids attacking the skin above the g-tube line; as well as a little infection.
This is the short story! We are back tomorrow in Boston at by 8:00am.
I will keep you all posted!!
Please keep us in your prayers.. hopefully she will come home tomorrow or Sunday.
Love,
pattie & gary, Gracie & max
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