Lots Happening. 8:45pm

Lots happening this week..

and I haven't written since my last 'mad' post!

I'm certainly not over it.. there's so much to tell you, but for now..

I need to just say.. we are still working on investigating it all.

It seemed there were at least 4 pages with Grace's pictures on it.

I hope the person(s) responsible for doing that are happy..

they not only did it to us..but lots of other families.

There time will come.

 

 

 

 

Unfortunately, I've been experiencing some crazy lower

back pain... so with the added stress, I certainly have not had a good week.

But Grace is doing great.

A year ago, she was celebrating Easter at Hasbro Hospital..

and today, she is sitting up in a high chair, trying new foods.. and she

is a happy & healthy toddler!

Even having some toddler behavior.. lol..

 

 

Now we don't add pictures (without adding copyrighted on the bottom)

What a pain!!

I went back to review some posts with older pictures..

and it brought back a flood of memories.

This person has really hacked my brain & heart..

I hope they get there's!!

 

 

 

Thanks for reading & sticking by us!!

Happy Easter to you & yours!!

 

 

 

Love,

us!



Disgusted. Upset. 9:31a.m.

I don't really know how to start..

I've been thinking about this non stop since last night..

I received an email from someone I didn't know, who had seen our blog and noticed some 'facebook pages' with Grace & Maxwell's pictures on them.

It's nothing that we put together..

so after a good three hours of figuring things out..

we learned that someone (most likely in the UK).. has been

stealing Grace's pictures (a few of max's) from the blog & posting them on

a fraudelent FaceBook page.

 

Maybe to get sympathy from people

(the pics when Grace was in the NICU & then at Hasbro)

and also to get $$ .. who knows if they really did.

 

 

This makes me so sad... and LIVID!

It was awful to see my pictures of my babies on someone else's page..

and the lies the person wrote about their 'babies'.. it was disgusting!

 

 

Many of my friends, and preemie mom friends have 'reported' the page..

I have filed numerous complaints with 'blogger' and 'facebook'..

I have a friend, who has a connection of a security person at FB and they

are also looking into it.

 

 

I'm sad that there are people in this world who would go out of there

way to do this.. It's sickening!

 

 

I don't want to take the blog down, as my Husband would like me to..

this was put up to update family and friends, and also be a resource

for other Preemie moms.

 

But with help from my friend, Melissa.. I will make the changes I need to..

to make sure this doesn't happen again!

 

 

 

 

 

 

Grace is doing fantastic!!

 

Thanks for being supportive!!

 

Love,

pattie & gary, Grace & maxwell

Zoo.

On Monday, we went to see Toe Jam Puppet Band..

Auntie Heather & the twins met us.. Jackson loves Grace..

he's soo sweet to her, and enjoys 'petting' her hand/face.. soo cute.

"LuLu/Olivia" likes Grace too..but Grace was pulling her hair..

she never said a word..just moved her seat.. :)

 

Then we walked around a little bit, visiting the indoor fish

and seals.. Grace did great.

Really can't wait til SPRING.. warm, sunny Spring.

 

Olivia & Auntie Heather

 

 

Jackson, me, Olivia

Sitting in front of fishies..

 

 

 

 

 

Thanks for reading.. I'm having fun.

Love,

Gracie



Wordless Wednesday 2:24pm

 

 

 

Thanks to PPP friend, Joanna..that taught me how to put this video on here.. now you guys can really see how Grace is doing.. and not just READ about it!!

Love,

pattie & gary, Gracie & maxwell

Weekend Walks. 5:38pm

Hi, everyone!! It looks warmer out than it is..

mid to high 30-40's yesterday & today.. but we still

went for a walk down the street to the beach & back..

here's some pictures..

 

 Getting ready!

  Today's walk..in this new/old pink Princess

stroller..(the same one I used for my niece when I used to babysit 2 years ago..)

hiding from the sun..

  Dada & Me.. "our beach" in the background

And we're home!! Daddy's trying to warm up my hands.

 

 

 

 

We don't have PT or OT this week.. so tomorrow we are going

to try & make it to Toe Jam in the a.m.

Grace is doing great..besides no nap on Saturday.. :(

but she napped good today, and we had lunch at vevo's house..

Grace had some lemon pudding & loved it!!

A few carrots too!

(we're trying!!)

 

 

 

We have an easy week coming up. I'm not sure if that means..LOOONNGG!!!

 

 

Have a good one!

love,

pattie & gary, Grace & max



You know your a mom when... 12:32pm

You get a new bed pal..(by accident)

 

 

Your house looks like a daycare..and you have no energy to clean it!

And the baby is sleeping.. but I have to write up the minutes from a work meeting

last night..so that's taking predecent.. so I better get off the computer..

but I couldn't resist showing you my new bed PAL last night.

Ha! It wasn't set up.. I got into bed & noticed Sophie had taken my space!!

 

 

 

 

 

And here's another upload from my phone..

how cute!!

 

 



Feeling a little better. 10:30pm

Took Grace into the pedi this am..

she has a Sinus Infection!!

At this age, her sinuses are not fully developed..so when

her sinus get infected, it comes out in her nose & eyes..

no congitivitis.. just sinuses!!

So, she's on antibiotics for 10 days..

she did have a slight fever today..and the ibuprofren is helping with that!

 

 

Grace played her favorite "ball" with Daddy tonight..

and we got some good pictures.. we didn't want to tire her out..

 

 

 

She loves her monkey!!!

 Hi Momma.

 

And just a second ago.. wearing her new PJ's..from her other

preemie friend, Hilyer.. :) Thank you!

  Dragons!! & her 'bear'

 

 

 

 

 

Thanks for the comments & prayers..

hopefully she'll be feeling better by weeks end.

 

 

 

Love,

pattie & gary, Grace & maxwell



Proud Mama of a Preemie. 8:57pm

Today is Proud Parents of a Preemie Day (& everyday)..

My pregnancy was perfect in every way.. til 25w3days..

when my water broke.  It's a day I'll/We'll never forget.

But it's okay.. we move pass & we call ourselves, PROUD parents

of our preemies!!

 

 

 

Preemie Parents come in all sizes, shapes, backgrounds, enthic backgrounds..

it's not just one reason that we go into labor..

sometimes there is a reason..and sometimes (like me) there is none..

 

 

 

 

 

 

I'm proud of how far Grace has come..

she was born at 1 lb. 13oz.. and it was touch n go in the beginning..

now she is 18 lbs. and a very happy, growing, healthy baby!!

(except today..this weekend, she is not feeling well.. viral infection, I guess.. we'll take her to the pediatrician tomorrow..good thoughts & prayers welcome.)

 

 

 

 

Don't judge a Parent of a preemie..

it can happen to anyone & it does!!

But it makes us Stronger..and our Preemies our Fighters!!

 

 

 

To all my Preemie Mom Friends (65+)..

Happy Preemie Parent Day!!

 

 

 

 

 

 

Love,

pattie & gary, Gracie & maxwell



Hats & Balls. 9:33a.m.

Good morning friends!

Grace has been a little sickie in the last 24 hours..

low to mid grade fever, alternating tylenol & ibuprofren.. I think

has done the trick.. she seems much more herself this morning.

 

She even smiled at the camera this morning.. definitely feeling better!!

She'll rest today, as she has nothing else to do!!

 This is a picture from this week..

Grace LOVES playing ball..and here is she is playing ball with her sitter, Amie.

Amie is a college student at UMASS for her master's & then going on to law school..

so I'm hoping she'll be with us for the next few years. She's great with Grace..

 

 

And a special treat from Auntie Dalila.. she got 3 new hats..

(here she is trying to take it off..she used to be a hat girl.. probably when she didn't realize it was on her head..)

 

 

Save the best for last...

Grace has mastered "blowing kisses".. and I was able to capture it:

 

sooo cute!!  love her!!

 

 

 

 

Thanks for reading,

Love,

pattie & gary, Gracie & maxwell

 



Look what I did today!! 6:51pm

I'm a big girl!!

This is a vest called, Benik..and this is the first time

I've tried it.. it helps support my torso, to help me stay up straight..

I sat up all by myself today..

 

and even SMILED when Mama took my picture!!



 

 

Then, Ms. Laura, my PT.. had me sitting up without the vest..

Mama says I did "GREAT"..and she's so PROUD of me..

I cried & was sooo mad..but I guess I did it..

I sat by myself.

 

I need to keep practicing though.. I think I'm really close

to do it without help!!

 

 

 

 

 

 

And for dinner, we had tacos.. I had smashed up black beans

with salsa & some cheese.. I used the spoon all by myself..

it was delicious!

Mama says I'll be eating this for breakfast too..

grrreeaattt! :)

 

 

 

 

 

Thanks for keeping up with my progress.

Love,

Gracie

my mama, dada, and my angel brother, Max



Pictures updated from my phone.

 from 12/16/12..

  January 3, 2013.. drinking in bed :)

January 20, '13

I want this hat off!!

 Jan. 26th..eating!

 just finding out that i have two holes on my nose!!

My beautiful pink sweater..Thanks Debbie Dowling!!

 

This is the most recent.. from tonight 3/3/13..

Grace was eating a cracker.. she bit into it & then didn't know what to do with it..lol

Chewing her cracker!!! :)

 

 

19 mos old!!! 8:18pm

Time flies when you're having fun!

Grace is 19 months old today!

 

 

Last weight:  18 lbs. 13 oz.

Diaper Size: 3

PJ's size: 12 mos

Onesies: 9-12 mos; Pants 9-12 mo.

Favorite toys:  Anything she can hold & shake & put in her mouth!

Monkey; Laptop; Loves to Play Catch with her Ball.

 

Smiles all the time & is a very happy baby!!!

Grace knows how to wave, she claps & signs "more"

Just recently (this weekend), when you ask for a kiss,

Grace will put her hand to her mouth to blow you a kiss!!

 

Grace has 4 bottom teeth, 4 top teeth..

and all 4 molars are coming in!!

(thus the fingers are always in her mouth!)

 

Grace is eating 3 meals a day via G-tube..

her schedule is 9 a.m., 1 p.m., & 6 p.m.

we try to accompany table food meal with two of those feeds.

Then in the evening, she has 3 more g-tube feeds, for a total of

750 ml's (25 oz) in a 24 hour period.

 

When she wants, she can drink from a sippy cup..usually water.

She holds anything you put in her hand, and licks it..

bread, toast.. pretzels..

she loves savory/spicy foods..

we've learned to thicken flavorful foods with baby oatmeal, bread crumbs,

or even mashed potato flakes..in pureeing soups..

she eats all table food..no more baby jars.

 

 

Grace is a great traveler!! She's been up to visit Noni & Grandpa in

Lewiston, NY (near Niagara Falls);

and many visits up to North Conway, NH.

 

 

Grace is just learning she has a voice.. she has always said "HI"..

and now she's continued making more sounds daily..

 

 

She's doing great! And we feel blessed every day that she's in our lives!

Happy 19 months, baby Grace!!

 

 

 

 

Love,

pattie & gary, Grace & max



Just been busy. 12:26pm

Just been busy with Gracie..

She went for her last synagis shot of the year yesterday,

and weighed in at 18 lbs. 13oz.

we need to get a little more weight on her, but she's 4 oz more

than last month; and she lost a few ounces last week when she had a virus..

so 4 oz. is great!!

 

She was sitting on the couch near Daddy the other day..

 

She also figured out that she has two holes on her nose!!

Look at all that curly hair..

she's getting so big..

 

 

 This is me & Grace this morning,

while Daddy took a nap.. (I didn't get the memo).. we hung out & played..

and went for a ride to the bank..

 

 

 

Hope you're all well..

Thanks for keeping up with our posts (even though they're every day!)

 

 

 

 

Love,

pattie & gary, Gracie & Max