23 months!

23 months.. which means in a month she'll be TWO!

Where has the time gone??

 

 

We had a follow up with the surgeon today..

Grace is doing great..gained 7 oz in 2 weeks.. the nutrition is staying in

her body!! She's in great spirits, with no leaking!

 

 

Grace weighs in at 18 lbs. 7 oz, and 31" long

She understands "everything".. if you say 'wave'; she waves..

she loves to point & grab everyone else's nose..

and she will touch her own.

Still loving music..

twinkle twinkle little star is a favorite..

and she's learning some sign language too!

 

  Playing catch... Grace loves playing catch!!

Eating a bread stick with marinara sauce.. she licked the sauce off

and sucked on the bread..

 

 

 

Grace eats dinner with us daily... whatever we're eating, she tries,

tosses, or throws :)  it's a learning process!!

 

 

Within a week or so, she will be off all meds

(two out of the three meds, she was taking to help with the acid burn of

her leaky gtube..now that she's not leaky, we can take her off those meds)

the third has been since the surgery to help move things along, and that's

going well too.. soo we are stopping that one as of tomorrow morning.

 

 

In August, she will be getting PT twice a week..

she will also be fitted for a 'stander' to help her posture in standing!

 

Our little miracle is getting there.. slowly but surely!!

 

 

 

Thanks for keeping up!

Have a safe & happy 4th of July!

 

love,

pattie & gary, Gracie & max