Exhausting Day. 5:09pm

It's been an exhausting day! Grace didn't sleep much last night.. a few

hours at a time.. and then has been up since 6:45 a.m.!!

OMG!!  While we are greatful that she is probably developing near her corrected age of five months, and that's what babies do.. 'stay up all night'..

we took her to the pedi's office again today for a high fever!

Bloodwork was done & she just has a viral infection..

staying on the same course as last week.. finish all the antibiotics, motrin

& tylenol..

She just cries & cries..

and on the other hand, her gtube area is leaking soo much more than usual..

I'm sure she's so uncomfortable, tired & hungry (who knows how much of her

formula she is actually getting).

It's been a frustrating day as a MOM!!

We will be seeing the GI Doctor on Saturday in Brockton..

and he says he has all the stuff to help fix the problem. At this point we would go on any day.. we need to get this fixed.  Small leakage is expected..but going thru blankets

and clothes 5 or more times a day is ridiculous!!  And frustrating!!

Please keep Gracie in your prayers!!!

She's been thru soo much .. and I feel like we can't cut a break!

Thanks,

love,

pattie & gary, Gracie & max