Happy Easter..

Sorry I didn't post yesterday..it's been a long past 4-5 days here at our home..

Grace, unfortunately has not been feeling well..

seems everyone thought it was her gtube (I swear sometimes it's just easier to 'blame' that)..but this time it wasn't... My gut feeling was it was a little more complicated.. POOP..

poor girl had some terrible stomach pains last week that woke her up from

a deep sleep.. she was constipated.. backed up so bad..

An eight hour wait between two hospitals last Thursday, finally gave to some

relief..but we are watching her carefully..as she did get a little dehydrated.

 

The good news is she drank out of a cup & from a syringe like a champ

this weekend..so we are capitalizing on that!

Friday she had 20 oz of fluids & Sat, 17 oz.. that is WONDERFUL for her..

and she is now taking daily prune juice (& likes it :) & water, and even

yogurt smoothies... we'll get there!!

 

Today she went back to school & had a little more reserved/quiet day..

but then tonight she had a really big bowel movement..and it seemed

to do the trick..she was back to herself (biting, pinching dada!) lol

 

 

We are going for a gtube study test at Hasbro, on Thursday..

please keep her in your thoughts & prayers..

We just want to make sure everything is moving as it should.  She did

lose a little weight the past few days & we just want to fatten her back up!

 

 

 

Hope you all had a nice Easter..it was low key with Vevo & Vevo' for us.

 

Off to bed..as sleep around here has been rare!

 

 

Love you all,

pattie & gary, Grace & maxwell