Saturday, April 27, 2013

Updates & Fun

Beautiful weather.. low to mid 60's today..
to take advantage of Grace & the weather, we headed to our local
Zoo this morning!
 

 



  And here is Grace checking out the bird.. She enjoys the wind in her face (not the sun!).. & checking out the animals..

 

 
Eating a pickle at Pub 99 the other night! She licked 2 pickles & loved them.
Grace has really mastered picking up food with her fingers.. she had her favorite, clam chowder for dinner last night.  She is still liking bold flavors.  Again, not eating enough for calorie intake, but nonetheless, she does taste everything!
(even the things she shouldn't be putting in her mouth..)
 
A visit to the nutritionist this past week, she's lost 1 lb in 3 months..
not the way we wanted her to go.. so we are adding "Duocal" to her g-tube feeds..
which is just a powder of condensed calories (sugar & carbs).. hoping that'll help
with weight gain.  And we are bumping her intake up as well... she is also more active than she was three months ago..& that eats up calories as well..
She's getting there!! Slowly, but surely!
 
Grace is doing GREAT with OT & PT .. she is nearly sitting up by herself..
we started Music Together classes about two weeks ago..
and listen to the cd's daily.  She really enjoys music!
 
I began an American Sign Language course, this past week, thru her Early Intervention
it's a 5 week course.. so I'm hoping to pick up some more signs to teach Grace.
Grace does HEAR, for those who wonder.. however, she has mastered a couple of signs already..and it's a great communication learning tool for toddlers.
 
Grace is a smart, beautiful little girl.  She has mastered her "silly monkey face"; especially when Vevo is around.
In case you forgot what that looks like..
 
 
Signing off.. Thanks for keeping up with us!
 
 
Love,
pattie & gary, Gracie & maxwell
 

Friday, April 19, 2013

I know...

I know, it's been awhile..
Thanks for coming back & sticking with me..
Grace is doing fabulous!
I'm a little hesitant, as the Facebook pages are still up..
but I will post some fun pictures this weekend.
 
It seems like daily, Grace is getting taller & taller.. :)
she's not as chubby though.. we go back to the dietician/nutritionist
on Monday..so we'll see if she's gained any weight.
 
 
 
 
There's alot I want to say.. but tonight it's all about
watching the news & hoping & praying for all of these
victims of the Boston Bombings.
Soo sad!!!
 
 
I'll update again this weekend..
 
Bless you & yours!
pattie, gary & Gracie, & Maxwell (too!)

Saturday, April 6, 2013

Big Girl!!

Today was the 1st day with Grace in her
Big Girl Car Seat..
 
 
 
 
 And then at Vevo's house, in her new big girl 'high chair seat'..
she's giving you all her "silly Monkey face"..
 
 
 
She's a big girl now!!!
 
 
 
Love,
pattie & gary, Gracie & maxwell


Thursday, April 4, 2013

Slightly hesitant.

After the whole FB scam thing a few weeks ago, I've been
slightly hesitant to update the blog.
I have reached out to a couple of news stations,
and the local Fairhaven
Neighborhood News.. for stories..
maybe just awareness for others.
 
 
 
 
On the good news.. Grace is getting soo big,
and so responsive these days.
We were at my doctor's office today, and when any (of the women)
said "HI" to her..she immediately waved!!!
 
When a man said "hi"..her little voice said, "hi"..
(just like her mama!! :)
 
  Here she is..showing you all her teeth..finally her back teeth are coming in..more than popped.  She's doing pretty well with them coming in; other then her hands in her mouth constantly.

And today.. at her favorite desk.
I caught her emptying her bucket, one by one toy..
 
She truly understands what we are saying..
Lately, we've been listening to a cd in the car..
her new favorite songs are, "If you're happy & you know it..clap your hands"
and she does clap right along with it.
Her other favorite is, "3 little Monkeys Jumping on the bed"..
today she clapped when that one came on.
 
She's a little love!
Getting so big!!
 
 
 
 
 
Thanks for checking in to keep updated on Ms. Grace.
 
 
 
Love,
pattie & gary, Gracie & maxwell