Rocky!

From Rocky.. "Getting stronger!!"

Grace is doing amazing!!! Her strength is amazing.. 

she is doing wonderful in school and with the help of her teacher & therapist, she's

getting stronger!!

This week at PT, Grace rode her tricycle (by herself!!)  I will upload it

for you today!  It's worth watching... We are so proud of her.

She can now walk with us holding each of her hands & she is asking

to go into the kitchen more frequently to open cabinets!! Yes, she likes to open cabinets

and see what's in them.

Yesterday, we had feeding therapy & she ate yogurt on a nuk brush.. a nuk brush

is an oral motor tool and we dunked the brush into the yogurt & she ate quite a bit..

this is going to be next week's snack for school. 

She has a barium swallow study coming up in the next few weeks..keep us

in your thoughts for that.. We're not sure we'll get alot of information..hopefully

she'll be in a good mood to swallow some liquid & maybe some yogurt.

She's getting big that is for sure!!

thanks for reading!

pattie & gary, Grace & maxwell

Fall. October 2015.

Hi.  It's been a month.. trying to get the computer to co-operate so I can add pictures,

WORK. FAMILY. LIFE. 

You know those things that might get in the way from me blogging!

But I figured if I updated monthly.. that wouldn't be so bad!

Grace is doing great in school.. just a virus last week had her out for a couple of days, but

some good friends & sitters stayed with her so we could work, a quick trip to the ER (long

night), and a few nebulizer treatments...and she's seems back to good!)

She's in pre-school all day now. 8:30 (with the bus) til 2:30..

she's doing alot more standing independently at school (still supported behind her),

trying to get better use of the walker..

feeding is 'ok'.. we're scheduling a barium swallow test within the next month..

g-tube is what it is.. we've weaned her a little to make her hungry & she's tasting

& eating alot more meltables..

Communication with the school seems better..

but had a meeting yesterday, and it would be nice just once to hear MORE positives in meetings

that anything else.  It makes me sad that Grace isn't up to her peers yet, but for what/where

she is .. I just have to be grateful (trust me I know that.. sometimes it's just hard!)

Her receptive language & social skills are definitely her age!

She's been called the 'little mayor' of her school, waving to all the kids as she passes them

by in her wagon.. (she uses a wagon for transporting from class to nurses office, etc).

Here's some pictures:

 With my Dad.. & NO she doesn't have a kitty!!

Her first birthday party for a friend..at Bay state gymnastics.. Momma got a workout too!

She is finally wearing 3T clothes.. 4T shirts.. what strides she has made in gaining weight..

in May '15 she went into the hospital at 24 lbs.  She is now a healthy

31 lbs, and about 38" tall.. 

Thanks for keeping up with her..

OCTOBER is baby infant loss awareness month..

we remember the 2 miscarriages we had prior to the twins

and of course MAXWELL..

the sad part is wondering what Grace & Max would be like

together!  She LOVES all her friends & school and her friends love to play

with her best.. I know they would've been great friends! Now he watches over her,

and no matter what anyone says.. it's NOT really for the best!

Love,

pattie & gary, Grace & maxwell